Tonight we watched Channel 5’s Extraordinary People: The Boy With No Brain – an amazing programme about a truly dedicated and inspiring family who we are proud to call our friends.
The programme gave a very inspiring insight into daily life for Noah from pre-birth until his fourth birthday, showing his progress and the lengths his family go to in order to create the best possible quality of life for him and to raise as much awareness as possible about Spina Bifida and Hydrocephalus.
It is clear to see from the documentary footage just how brave Noah is, no matter what obstacles are put in front of him he will face them head on with a huge, infectious smile.
You will see that there were several medical professionals included in this programme who each gave their views and opinions on Noah’s case.
Clearly each child with these conditions are different as is the progress they make through life, this is something also explained by the medical profession and they also go into detail about the ‘growth’ of Noah’s brain, potential reasons, etc.
Nobody has ever stated that Noah has no brain, since he was born it has been common knowledge that only 2% of his brain was showing which by the age of three years had ‘grown’ to 80% which I am sure anyone would agree is superb.
The documentary also features another little boy too with is own very interesting and emotional story… the other child’s problem is not Spina Bifida or Hydrocephalus related.
We are so proud of Noah and his family, proud to have them in our lives and be able to call them our friends.
We love you lots and lots Noah, you really are a superstar!!! ❤ 💛 💙 💜 💚
Sending you all lots of love and hugs, you did amazing!!!!! ✨✨✨
Love Laura and Dan xxxxx